I didn’t sleep well last night and lack of sleep causes my pain to shoot up . I need to get at least 8 hours for the pain to be at a “6” on the 1-10 scale. Today it’s at an 9 and it’s not even 10 a.m. Then I get angry and then it gets worse. It is beyond frustrating, all the things that make it worse. Here’s a little lesson on negative/positive thinking:
Pain is:
Worse with lack of sleep Better with more sleep
Worse when I don’t eat Eases off with food, especially protein
Worse when I do too much Better with a lot of rest
HORRIFIC without medication Tolerable with every dose
Worse when I’m too emotional Better if I meditate, listening to soothing music
Worse if I never emote Better if I allow myself to cry occasionally
Worse without “alternative” care Better with acupuncture, reiki, massage
Worse with isolation too long Better when I see someone once a week
That’s all I can think of at the moment. Feel free to add your own in the comment section. There is one which is hard to write about because it depresses me. A friend called yesterday and said I should throw my walker in the car and go somewhere for a short walk. Good advice. It’s pretty hilly in Seattle but there are some flat places I could go. Obviously, exercise helps with a host of things if you can do it. My pain feels worse if I move too much, but if I don’t move enough, other things start to fall apart…..I get constipated from the drugs, my heart races, my muscles atrophy….etc, etc.

And today sun is out, the sky is blue, it’s going to be in the high fifties and it’s Super Bowl Sunday which means I can go somewhere and there won’t be crowds of people.
Sometimes I’m so frustrated I could cry.
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