Welcome and thanks for visiting me here! If you are new to this blog, start with "Bumps of Beauty" and other earlier pieces. "The desire for freedom, as it motivates us to our
natural state is great joy;
The desire to be free from the way things are is great suffering" (Stephen Levine)You can email me at firstname.lastname@example.org
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I had not talked to my friend Ted since Easter so I phoned
him this morning. A woman answered and I
knew instantly that he was gone. It was
his ex-wife and she told me the news. He
had been sick with pneumonia and in the hospital. He was septic. No pain medication was making him comfortable
and the family had to keep asking the doctors for more. They finally switched from morphine to
diladid. His wish was comfort only; DNR, DNI. He passed last Saturday, April
I met Ted through the Washington state chapter of NF over 8
years ago….the president of the chapter told me about him being isolated, as I
was. So we emailed each other for a long
time, then started calling and eventually met one time….a time I will now
cherish. His sister took some pictures
of us and I’m posting one here. He asked
me not to while he was alive.
Ted was the sweetest soul I’ve ever met. In spite of his many challenges, he had a
positive outlook and was always kind to people, even when many were not so kind
to him. I will miss his words of wisdom
and encouragement, his soft and sweet voice, his wicked sense of humor and our
shared anguish over the pain we were both in.
I look forward to the day my journey here is over and the pain is no
more. Of course, I don’t know for sure
the pain will be over, but that is my fervent prayer.
Right now I’m in a state of shock. I can’t imagine never hearing that voice
again. But I am also happy for him; it
is what he has wanted for a very long time.
And the past few months he’s told me he knew it wouldn't be long now. I think he started to distance himself from
me for that reason.
Please, if you can, make a donation to ctf.org (children’s
tumor foundation) in his name. And say a
prayer for Ted Ptak, one of the bravest, strongest, kindest people I’ve had the
pleasure to know. This was Ted's favorite song.....now that he has wings, he can get there! BTW, the pic of us is eight years old....I've changed.