Well, the CBD is a bust so far. Big surprise.
My pain receptors are full and opioids do nothing so I thought a back
door approach might work. Will use what
I have left, but the pain is just getting worse and worse. It doesn’t help that a 10 pound cat loves to
sleep right on my legs. I told him he
could only sleep there is he would heal me.
And he’s a whirling dervish in the mornings. Knocking things over and
breaking a few. If anyone wants
him….(kidding…sort of)
I have been going over my wishes for after I die with my
family. Still working on a backup plan
if the bio storage thing that CTF is supposedly putting together isn’t up and
running. I have a call in to the pain
clinic at the U to ask them if they have a body donation program. I just want it to be for NF research and
nothing more. And before that happens, I
want the traditional Jewish way of watching over the body after the soul exits,
for three days (loved ones take turns).
It’s difficult to have these conversations, but
necessary. I encourage you to have them
with your families, whether or not you are ill, because you just never know
what is going to happen and you don’t want your loved ones and or friends
wondering what you would have wanted. Part
of me just doesn’t care, but I did put a few things together besides what to do
with my body.
I’m not sure how much longer I can do this (the blog). I will try, but it’s been getting harder and
harder because of the pain and my mental and emotional health. But I’ve enjoyed doing it and it has kept me
somewhat sane. If I don’t write anymore,
I thank you all for reading and I hope it’s helped you sometimes, in some
ways. We shall see….
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