The day will come when lights are low and all I’m breathing
in will go
Then to this world I’ll bid goodbye and hope you know I did,
I tried
I fought like mad against the pain that seared right
through, all grip all gain
I’ve often left it through my mind in search of comfort hard
to find
Precious pain-free moments heaven, pain dips down from 10 to
7
Music, oils and meditation, seeking comfort, speculation
Surgery is my last hope to find relief whatever scope
If that bid fails no option’s left, I do not meet the
standards set
for helping those in mortal pain but no “by when” date, what
a shame
A life of pain with no conclusions, no longer clutching doped
delusions
of hope that pain will end in time, to have a life out of
this bind
I know they have to draw the line on who to help but what a
crime
Left alone to make a choice, take the action, use my voice
But “what if’s” haunt as much as pain, the list is long as
is the strain
of questioning why I’m here, is there a G-d and is He near?
Or was my birth and shattered gene, just a crapshoot, not
foreseen?
If that’s the case why wait around just pack my bags and
leave this town
But if there is some truth to learn, then patiently I’ll
wait my turn?
and live in torturous, intractable pain, it’s hard to
believe this was ordained
One thing is true, for this I pray, to not return to Earth
one day
And when it’s time and lights are low, all my breathing in
will go
Thanks for writing this. I have NF and Fibromyalgia, and can relate a lot to what you are saying. I've wondered how to hold on to living when it feels like every day is such a struggle, dealing with the constant pain, and myriad of symptoms. You are not alone, even if you may feel that way. Thanks for making me feel less alone in all of this.
ReplyDeleteThanks, Amir, for your lovely comment. I appreciate it. I sometimes think no one reads these but then I get a nice comment like this one or an email. I am so sorry you are dealing with this as well. It's a tough road....I just keep telling myself there is a reason for all this...and that lots of people have it worse. You are NOT alone. Not by a longshot. Email me any time....the address is at the top of my blog.
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