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Wednesday, April 8, 2015

Been a While

Man, it’s been a long time since I posted anything.   I’ve been out of the hospital and home for a month already.  I even got to see my acupuncturist last Monday….hadn’t been to see her for two whole months and I could tell.   Even though it only grazes the pain (like everything else I’ve tried), it helps with other general things and lightens me a bit…you have to be grateful for what is right in front of you, right?

All the eaglets hatched from the Decorah Eagles site that I so love.  They hatched a few days apart and they are a little over a week old.  Already growing so fast.  Eat, chatter, sleep.  And the parents are such good ones….it’s impossible not to watch, laugh, and realize how fragile and beautiful life is.  I am watching them in another window as I write this….they relieve each other of parental duties; they still cozy on over them to keep them warm because they can’t regulate their own body temperatures for the first two weeks.  This is my second year following them and I learn so much every day.  Visit them at:  and sign on (no obligations or cost) so you can watch the “chat” and learn.  You don’t have to participate, but if you have a question, you’ll get an answer in a very short time from one of their many volunteer moderators.   I stay away from social network sites, but this one is a major learning experience, it’s respectful, and the mods do a great job of keeping it family friendly….kids watch with their teachers and classrooms.  And the panning and camera work, also done by volunteers, is amazing.  I have more screenshots then I’ll ever use!  And the hummingbirds drink so much I change the feeder daily!

The pain has been pretty much unbearable for days on end, but today, I got out for the third time in two months (that wasn’t a doctor appointment) and went to the bank and to get some more of my probiotic stuff.  I take so many supplements it’s ridiculous.  But I hope that it balances out all the yucky stuff I have to take.

And something is wrong with my very expensive air bed.  I wake up in the middle of the night and it’s so deflated it’s like sleeping on a wooden pallet.  My helpers and I have looked and looked (and listened) for a leak but we can’t see or hear anything.  It’s maddening.  I have enough trouble sleeping without this.  My brother though I should go and get a regular mattress and maybe I should.  I like the air one, though, and I have a mattress topper that is really fluffy and cozy.  It’s a mystery.  But it feels horrible because I am so thin and the tumors are everywhere so it hurts…everywhere.

I am also adjusting to my new/old regiment and taking the drug I hate.  But I hate all of them, as they do little or no good whatsoever.  I started thinking of all the things I’ve survived that should have killed me from scarlet fever, NF to near drowning to cancelling a trip on a 18 seat plane, only to hear it had crashed and killed everyone on board.  Makes me think.  Actually, throws me around between total confusion (as to why I am still breathing) to laughing my head off.  G-d has a sense of humor, I’ll give you that.

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